spiderdust: (sunlight)
I hate being sick, especially knowing that it's not going away.

I hate how one night of short sleep will sap my energy for a week.

I hate having to refigure my limitations on a daily basis.

I hate how I have only 5 or 6 usuable hours in a day (if I'm lucky).

I hate knowing that I'm probably going to have to give up things that I like in order to function.

today

Aug. 3rd, 2005 05:02 pm
spiderdust: (cartoon me)
  • put flyers for the show around town
  • picked up a few CDs (I'll list those in another post later)
  • FINALLY registered for my class! (paid for it too!)
  • purchased parking pass for school
  • picked up paperwork for Disabled Student Program (which reminds me, I need to make an appointment with my doctor)
  • bought some fabric and notions
  • spiderdust: (gish)
    Today I go to work, but not at my own store. The Pruneyard/Campbell store is short staffed today & asked for volunteers from other stores.

    It's a full 8-hour shift, doing stuff that I don't generally do for 8 hours a day.

    The money will be good, but I wonder if I'm going to be pushing myself too hard today? At least I'm off tomorrow.
    spiderdust: (gish)
    Does anyone know if a cane counts as your one personal item in addition to your carry-on bag when flying, or would one be able to board with, say, a carry-on bag, a purse, AND a cane?

    I'm taking the cane for the trip because I'm sure I'm going to need it (especially at the fair in Missouri), but it won't collapse small enough to fit in my suitcase, plus I might need it at the actual airport.

    I checked the airline's website, and while it mentions that you may have a personal item (such as a purse, or a briefcase) in addition to your carry-on, and it mentions that canes, walkers, and oxygen tanks are items that you may bring on board (even though they exceed the size restrictions), it's unclear as to whether or not you can bring a cane in addition to a carry-on bag and a personal item.

    Help?
    spiderdust: (sunlight)
    Back to the doctor again, to find meds that work. Not only am I not sleeping, but my heart will do weird flip-skippy things too.

    I wonder if this is worth it?
    spiderdust: (gish)
    That's what I've just been prescribed for my fibromyalgia. Anyone familiar with it?
    spiderdust: (sunlight)
    I have been in blinding pain for the past 3 days. I guess the diagnosis procedure on Friday triggered everything, and nothing seems to help it very much.

    I know this is going to ease up eventually, but WHEN?!?!?
    spiderdust: (sunlight)
    The doctor also thinks I have fibromyalgia. :/

    He's also having me retested for thyroid issues, rheumatoid arthritis, and elevated levels of uric acid. They're all going to come back negative again, but he just wanted to cover the bases.

    Apparently he's checked me for lupus before. I didn't know that. Thankfully, that was negative too.

    So what does all this mean?

    For starters, it means that he doesn't think it's in my head either.
    It also means that while there are some treatment options out there, there's not a whole lot that can be done about it. Diet, rest, and exercise can slow it down somewhat, but they won't cure it. Since no one really knows what causes it, no one really knows how to fix it.
    spiderdust: (Default)
    Go to gym at 5:30am.
    Workout. Shower. Come home. Possibly sleep a little more (not likely).

    Go to doctor, get refills on prescriptions, talk to him about bubbling chest and fibro stuff.
    Possibly get poked and prodded.

    Go to pharmacy, refill prescriptions.

    Pick up [livejournal.com profile] brightbluestuff from airport.
    Let her sleep and/or shower, help her run any errands. Feed her at some point.

    Take [livejournal.com profile] brightbluestuff to a different airport 7 hours later.
    Put her on plane. Wave bye-bye.

    Come home.
    Collapse.
    spiderdust: (Default)
    My blood tests for rheumatoid factor came back negative this time.
    (Which means my previous physician misdiagnosed me when she told me I had rheumatoid arthritis.)

    So I'm not sure what we'll look at next. Possibly osteoarthritis? I don't know. What else shares symptoms with RA? Obviously something's not right, otherwise I wouldn't have to use a wheelchair when I go to the mall in the winter & be in excruciating pain when I get up in the mornings.

    I'm both relieved and annoyed that the rheumatoid factor tests came back negative. Relieved, because it means I don't have an autoimmune disease that will eventually affect my internal organs. Annoyed, because I still don't know what the hell is wrong... again.

    This is part of why I've been making the effort to exercise lately. I figure it can't hurt (much) and it's supposed to help.
    spiderdust: (Default)
    I was out of the apartment for a couple of hours today & was wiped out & exhausted before 12:30pm., and nearly fainting with the effort it took to walk from the car back into the apartment. Something is not quite right here.

    I've got the words "chronic fatigue syndrome" ringing in my head again, words that I had thought were gone. I had figured that I was misdiagnosed and my problems were really the hypoglycemia & arthritis. Heck, even when I was being diagnosed, I was told that they weren't really sure what was wrong, but that CFS seemed to fit. (Back then, CFS was pretty much a "catch-all" diagnosis.)

    Yet here I am again, too winded from a hearty morning of sitting down.

    I can't stay like this. I have to go back to work tomorrow, I want to see people, I need to function. I don't know what's going on.

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    spiderdust

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